Meet Bizarre! The 16 year Old ‘Snake Boy’ Sheds His Skin Every 41 Days [PHOTOS]

http://www.nigerianmonitor.com/2014/09/29/meet-bizarre-the-16-year-old-snake-boy-sheds-his-skin-every-41-days-photos/
Ari Wibowo sheds his skin like a snake every 41 days and must
constantly smear his body with moisturiser to stop it hardening and
seizing up.
The Indonesian teenager has a rare skin condition that doctors in
Indonesia have been unable or unwilling to treat and which has left him
with an extraordinary appearance.
He suffers from Erythroderma, an inflammatory skin disease also known
as ‘red man syndrome’, that causes the skin over almost the entire body
to become scaly and flake off.
Ari has shed his skin every 41 days since he was born 16 years ago. He
must soak his body in water every hour – night and day – and smear
himself with lotion every three hours to prevent drying out.
Photographer Nurcholis Anhari Lubis, 35, has documented the little boy’s
condition as part of an essay project and describes the boy’s skin
condition as ‘scaly like a snake about to shed his skin’.
‘It’s really sad because he was not born normally and has scaly skin all
over his body, similar to being severely burnt, from the sole of his feet
up to his head,’ Mr Lubis told Daily Mail Australia.
‘If the boy doesn’t moisturise or soak his skin in water, his body would
shrivel and harden up like a sculpture and he won’t be able to move,’
Mr Lubis said.
‘If he leaves it unattended for too long, he won’t be able to speak
because the wrinkles inside his mouth would go hard and it would dry
out all his blood in his body.’
Mr Lubis said Ari’s family were told by doctors at the hospital where he
was born that it did not have the resources to treat the condition, and
asked them to take the infant away.
He and his family now live by a routine of constant washing and
dressing his skin with creams.
Still, the boy is trying to live a normal life in his village.
‘He eats normal food like everyone else and his favourite snacks are
instant noodles and crackers,’ Mr Lubis said.
‘He had trouble making friends when he was younger and would often
go and play with the other kids but most of the time, they would avoid
him because he is different to everyone else.’

Ari must contantly wash and moisturise his skin to stop it from drying out Ari has had trouble making friends because he looked different and people feared his condition may be contagious Photographer Nurcholis Anhari Lubis has documented Ari’s life for an essay project Ari is taking lessons, but is forced to study alone because of ignorance about his condition in the community. ‘No schools are willing to accept him because they fear his skin condition would be contagious to teachers and other students,’ Mr Lubis said. Ari also suffers prejudice because of superstitions in his village. Mr Lubis said many people blame Ari’s condition on a superstition that if a woman mistreats animals while she is pregnant then it will affect her unborn child. Some people believe Ari’s mother ‘tortured a lizard’ she found in the family home when she was pregnant with Ari. ‘I do not believe the myths but in Indonesia, there are still a lot of people who believe this,’ Mr Lubis said. Jakarta-based Mr Lubis spent four days with the little boy and his family. ‘When I approached Ari for a photo shoot, he looked very shy but didn’t feel embarrassed and was happy to share his story,’ he said. ‘My interests have been to document lives and the way humans live in their own world, interacting with it and struggling to change it into their own way.’ Ari has trouble talking because of the condition and the vision in his right eye is impaired, while the left must be kept moist with constant drops.